Saturday, November 29, 2008

Grandma Ginny with Little Jane


Byo-O bye-o little baby
Close your little baby eyes
You are mommy's little baby
You are daddy's little prize.
This is just a post to say a few words about grandma. A widow for 46 of her 90 years, she as been our determined, beautiful matriarch. As she nears the end of her life, she told me what she thought was most important. She said she didn't care about what church callings she had, or what people had thought of her. She just wanted to be a good mother. She loves her family with a love so strong it has kept her alive beyond her years.

Grandma loves Jane. Even before Jane was born, they had a special connection. I cannot help but hope that Grandma will watch over Jane for many years to come. I don't think Grandma will be with us much longer, so we will cherish these quiet moments.

Wednesday, November 19, 2008

Sweet Jane


It's time for an update since so many new things have been happening to Jane. In October she was fitted for DAFOS (little feet braces) to give her extra support as she learns to walk. This was done up and Shriner's Hospital, which operates on donations and allows patients to be seen and treated without payment. Thank you Shriners!
First Jane had to be fitted for the braces. Here they are putting a cast on her leg.

This cast is removed when it dries and provides a model for the braces.
When we first walked into the room, we were greeted with this ominous table. It looks like some sort of torture device. Fortunately, the table was neither spoken of nor used.
Then there was the part where we felt like we were picking out curtains. The doctor came in and tossed us a ring with all of the patterns and colors available for the braces. I don't know, it just seemed funny at the time. We went with the always fashionable "Hawaiian Package" with a lovely flowered strap with red foam and white plastic. It was funny and profoundly sad at the same time.
A couple of weeks later, the braces were finished!

Here's Jane bouncing around with her new braces.



Jane also has physical therapy at Shriner's once a week. This is her great PT Holly. Holly works with Jane to improve her strength and balance, and gives me suggestions on what I can do to help her at home.

Jane and the Big Mean Ball of Torture


On a related note, Jane has seen some great improvements as she has temporarily stopped taking her seizure medication. The side effects were not good (nausea, fatigue, muscle weakness, etc.) and now that she is off of them she seems much more alert and happy. We're hoping that the seizures won't start again, or if they do, we can use a different medication.

What a ride this has been. I have learned many things and hope that Jane can continue to make improvements. I've learned that "normal" is overrated, that God knows all of his children, and that scarf dancing, while perhaps being a good therapy for others, is enough to send this mother head first into an existential crisis and should never be attempted again.

Monday, November 3, 2008

Fall at Wheeler Farm


The kids were out of school on Halloween, so we killed some time at nearby Wheeler Farm. Strum and Brittany (w/respective moms) met us there for lunch. It was such a beautiful day, and it was great spending some time with friends from the "old neighborhood".

Emma's so cute it's scary.


Here's Jane trying to catch up to the kids. Come on Jane, you're almost there!


I'm so glad our girls are not too cool to climb trees. I know we're just a few short years away from "whatever, mom, I'm not climing that tree. I might drop my phone."








These geese, or as our friend Scott calls them, "rats with wings", are being pretty aggressive once they disover that the kids have food.