
Developmentally delayed. I hate that word.
Delayed. I suppose it implies hope, as in, "Mrs. Cheever, your train will be delayed, but not to worry, it shall arrive momentarily." Well, we can't see Jane's train, but we can hear its distant whisper.
We don't have all the answers, but we discovered a few things these past few weeks. A recent MRI showed the same damage initially seen on her first MRI. That is, scarring in the white matter of the brain that affects vision and vision processing. Initially not thought to be significant, they now think this is the primary source of Jane's issues. This scarring follows a pattern similar to premature babies, although Jane was full term. How the scarring happened is a bit of a mystery, although they think it occurred during pregnancy.
So, here we are with a little more knowledge and a little more hope. The damage is done, and she is moving forward and making great progress. No more seizures. Steps here and there. Small things, like how she quietly folds her arms for prayer, even though she doesn't say the words. A small, imperceptible wave goodbye.
What of her future? She'll set her own course, improving steadily and surely. It is a blessing I shouldn't forget. For my reality check, I sit in the neurology clinic at Primary's and watch the other parents. Some parents breeze in, navigating their wheelchair-bound child effortlessly, and check in with a smile. Whee! Other parents can barely hold it together. I watched parents of a teenage girl who was mentally disabled and they just looked so exhausted.
I don't know what kind of parent I am. I know I won't do therapeutic scarf-dancing. I know I feel guilty for sometimes wishing she were normal. I know I'm scared for her future. I know that I will hunt anyone down that is mean to her and run them over in my white minivan. Most of all, I just love her.
I love her gentleness, even when she "helps me file the papers".

I love her
blonde curls and sweet smile.

I love her patient way of figuring things out.

I love her growing strength.

I love her
curiosity.

I love her determination.

I love her.